1. Reflections and responses: six models for understanding how families experience the system of care for children with special health care needs Author(s): Hughes, Dana, author Publication: Palo Alto, CA : Lucile Packard Foundation for Children's Health, November 2014 Subject(s): Child Health Services -- supply & distributionChronic DiseaseFamilyHealth ResourcesHealth Services Needs and DemandModels, TheoreticalChildFocus GroupsHealth Services AccessibilityVulnerable PopulationsHumansUnited States
2. In their own words: improving the care experience of families with children with special health care needs Author(s): Hughes, Dana, author Publication: Palo Alto, CA : Lucile Packard Foundation for Children's Health, May 2015 Subject(s): Child Health ServicesChronic DiseaseDelivery of Health Care -- organization & administrationFamilyHealth Services Needs and DemandPatient Participation -- methodsCommunication BarriersContinental Population GroupsLanguageParentsQuality ImprovementSocioeconomic FactorsHumansUnited States
