AcademyHealth, a national non-profit professional organization, works on initiatives focused on innovative ways to make health care work better. This is the story of one of those initiatives. The Electronic Data Methods (EDM) Forum began as a way to connect 11 Agency for Healthcare Research and Quality (AHRQ) grantees working to improve the use of electronic health data (EHD) to improve health care. The grantees came together at a time of great change in health IT and were funded under the landmark American Recovery and Reinvestment Act (ARRA). This legislation incentivized the meaningful use of electronic health record technology and kicked off a race to harness the power of health data. While technology is about precision and detail, those who can see the big picture are the most effective overall. AcademyHealth was chosen by AHRQ in 2010 to connect the ARRA-funded grantees in a dialogue around shared issues and challenges related to the rapidly evolving health care system. What followed over the next six years turned out to be much more than that. By 2016, the EDM Forum had become a community 4,000 strong, built on trust and mutual respect for diverse expertise, and committed to working together to solve some of the most pervasive issues in health care by viewing those issues as shared challenges. This community would ultimately bring together innovators on the front lines of health care from health care delivery systems and public health agencies; develop and share recommendations before the most influential federal agencies; and lead a national dialogue on critical issues such as governance, data sharing, methods and analytics, and dissemination of findings.
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