This report compiles and summarizes key findings from all three project activities: the literature review, the environmental scan, and the roundtable meeting. The purpose of the report is to provide policy makers with an understanding of the current landscape regarding metrics, methods, and data for quantifying the burden of illness. The report is therefore expected to serve as a primer on burden of illness for Office of the Assistant Secretary for Planning and Evaluation (ASPE) staff and other federal policy makers so that burden estimates can be better utilized in policy development. In Section 2, we provide a brief overview of commonly used burden of illness measures. Section 3 describes key methodological trends and needs in burden of illness measurement, and Section 4 describes the main data trends and needs in burden of illness measurement. Section 5 discusses issues surrounding the use of burden of illness data for making policy decisions, and Section 6 summarizes lessons learned from this project about burden of illness and discusses issues for further consideration.
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